Donor Family Facebook Group Disclaimer and Terms of Use

Disclaimer:

Welcome to the Donor Alliance Donor Family Facebook Page. This page is administered by the Donor Alliance Aftercare Department for the purpose of providing a forum for Donor Alliance donor family members to connect with and support one another along their grief journey.

This is a private Facebook group, which means that only members can see the group, who is in it, and what members post. Membership to this group is limited to donor family members, and is by invitation only. All members must read and agree to these terms of use, and complete the request to join on our website (insert URL) before being invited to join the group.

While Donor Alliance periodically monitors this page, it is not monitored 24 hours/day, 7 days/week. This group is not a support group or counseling site. If you would like a referral for grief support groups, or information on finding a counselor, please contact the Donor Alliance Aftercare Department by calling (303) 370-2737, or emailing familysupport@donoralliance.org.

Terms of Use:

Please adhere to the following terms of use when participating in conversation on this page. If you do not wish to abide by these terms, please exit the site and remove yourself from the group list.

Emergency Services: Although this site is periodically monitored by Donor Alliance Aftercare staff, it is not monitored 24 hours a day, 7 days a week, and emergency support is not available through this site. If you are struggling with your grief in such a way that you are thinking about hurting yourself or someone else, please call 911 or go to the nearest emergency room for immediate help.

Medical Advice: Specific medical advice can only be provided by a physician. Donor Alliance Aftercare staff are not medical physicians. If you have specific questions concerning your health or medical status, please consult your personal physician.

Privacy and Security: Although this page is a private group and membership is restricted, you are sharing information on the internet. By its very nature, social media sites cannot be considered private or secure. You must take appropriate steps to protect your personal information on the internet and on any social media site. Donor Alliance will never ask you to share confidential information publicly on this page.

Personal Health Information: No one may use or disclose any member/patient identifiable information (except their own) of any kind on any social media without the expressed written permission of the member/patient. Even if an individual is not identified by name within the information you wish to use or disclose, if there is a reasonable basis to believe that the person could still be identified from that information, then its use or disclosure could constitute a violation of the Health Insurance Portability and Accountability Act (HIPAA) and Donor Alliance’s Corporate Compliance (QS210.01) and Confidentiality (AD110.01) policies. Content that includes personal health information that is not your own, cannot be posted to this site. To protect the privacy of both donor families and recipients, Donor Alliance adheres to established protocol that guides donor family-transplant recipient communications (SD170.01) as well as Facebook’s terms of use and rules.

Proprietary Information: Members may not disclose any confidential or proprietary information of or about Donor Alliance, its affiliates, vendors, or suppliers, including but not limited to: business and financial information, represent that they are communicating the views of Donor Alliance, or do anything that might reasonably create the impression that they are communicating on behalf of or as a representative of Donor Alliance.

Content: Members are encouraged to share their experiences and thoughts on this page, to connect with other donor family members, and help one another on their grief journey. Please only share your own information and story on this page, and refrain from sharing personal information about other donor families, donors, transplant recipients, transplant candidates, or individuals, unless you have permission to share from the original source. Additionally, we do not allow any posts that are considered endorsements of products or services, and members should not use this site to solicit contributions. Although we do not intend to heavily moderate this page, Donor Alliance reserves the right to delete user posts or content for reasons including, but not limited to:

posts containing confidential/proprietary information; content of posts conflicting with any Donor Alliance policy; posts containing donor or clinical activity information; posts that are unprofessional or inflammatory (i.e., libelous, defamatory, false, obscene, indecent, lewd, violent, abusive, threatening, harassing, discriminatory, etc.); posts adversely affecting Donor Alliance’s mission; posts containing misinformation about donation or in general; posts containing anything that discourages donor designation; posts containing anything that adversely affects volunteer involvement; and/or posts that are overall offensive to supporters. Anyone who continues to disregard these guidelines will be blocked from the site.

We want this to be a safe place for donor family members to connect and engage with one another. At times, it may be possible that posted content may cause personal discomfort. If you feel uncomfortable with information on this page at any time, and think it violates our terms of use, you can report a post by emailing familysupport@donoralliance.org or sending us a private Facebook message.

Thank you for visiting and supporting our page! If you have comments or suggestions, please call the Donor Alliance Aftercare Department at (303) 370-2737 or email us at familysupport@donoralliance.org.